New Parents

New or Expectant Parent / Caregiver

You may have recently had a test and your doctor or geneticist has told you that the baby you are expecting has Down syndrome. You may have recently given birth to a baby that has Down syndrome. Whatever your circumstances, we have been there, and know the kinds of feelings and thoughts you are having, because we had them too.

Rest assured, you are not alone. There are other parents in your community, possibly right in your own neighborhood, who have a child with Down syndrome, and would be grateful to talk with you and share your thoughts and concerns. On our New Parent Support page are the names and numbers of parents who are happy to talk with you.

These pages contains resources that we have carefully selected to share with you because believe that the support that you receive in the earliest days are vitally important. Together with local partners, we work to provide families with reliable and supportive resources and a community that celebrates all children, and empowers parents to be strong informed advocates for their children and to always be parents first!

You may not be ready to talk with other people right now, and that is totally understandable. You may not even want to read or know anymore more right now about Down syndrome, so you can bookmark this page and come back to it later if you want. It’s entirely up to you.

Get Support

Visit our New Parent Support Page, for lots of information to help you along your journey.

New Parent Guide

A resource for new or expectant parents of a baby with Down syndrome, as well as friends, families and medical professionals.

Learn more about the New Parent Guide

Heart Booklet

A resource for parents of an infant or toddler with Down syndrome preparing for heart surgery.

Learn more about the Heart Booklet

Parent / Guardian / Family Member of School Age or Older Child

As our children grow from little babies to toddlers and students, we as caregivers find ourselves continually learning about next steps we can take to support them on their journey to adulthood. While some of the urgency of learning how to care for your little one begins to dissipate, it is still vital that you as a parent are informed and empowered about the best way to support your child follow his or her dreams for a full, rich, inclusive life.

With the expertise of “veteran parents” in our community and the input of many advisers in the fields of education, wellness, medicine and adult supports, NWDSA is a great resource whether you are navigating your first IEP or looking at the transition out of high school and into adulthood. The All Born (In) Movement is the home base for our cross-disability inclusion work, and we encourage you to visit to learn more about the programs offered, such as our annual educational inclusion conference, kindergarten readiness programs, and college programs.

We also offer social and recreational activities for the  families in our community. You can find a schedule of events, activities and drop-in hours on our Event Calendar and more resources on our New Parent Support Page.